Of all the t
hings that have happened in the last few weeks, the one that's hardest to come to terms with is the loss of trust and comfort I had in dropping my boys off at school with a team that two weeks ago I would have told you was one of the best you could hope to have for your children. I thought they cared about both of our boys, who are both largely non-verbal and require a lot of support and supervision. I also thought that they would be the advocates they deserve to have in a building where they spend seven hours each school day. I truly believed that we were a team, working together each and every day to help our boys succeed. There have been so many positive and amazing moments in the last nearly three years.
How quickly it can all change ...
I honestly did not want to take my boys to school on Monday. Driving out of that parking lot was one of the hardest things I have ever done. It did not get easier on Tuesday or any other day that last week.
The incident happened on a Friday afternoon, one week before the end of the school year. My email response prompted a fairly quick email response from two of the three people to whom I had addressed my concern. And though perhaps not intended as such, that response came off as incredibly dismissive and even evasive. In fairness, it should also be noted that they both stayed late, one of them even returning to school from a grade-level planning conference off site, on a Friday afternoon in order to do so. Their response also came in the environment of severe district-wide budget cuts that will leave several staff members unemployed at the end of the school year.
Despite all of those things, the first and only response to my concerns
should have been an apology, if not for the incident itself, at least for the fact that I had concerns and also a few statements that simply said we will look into what happened during the time in question and we will make sure that we respond to your concerns. Notice I don't even expect someone to validate my concerns at this point, particularly because the people to whom I expressed concerns were not present at the incident. A simple apology that I was concerned and confirmation that they would look into those concerns and get back to me is all that I truly expected.
My second email response, not a very happy one as I had felt dismissed in my initial concerns, was clear I wanted to discuss the issue further. I didn't get a response Monday morning, or Monday afternoon.
So Monday afternoon, I showed up at recess again to check on my boys.
Both Sawyer and Xander were at recess, both of them within feet of the paras who had previously been with them this school year during recess. Toward the very end of recess, Xander's classroom teacher came over to tell me that even though I had not yet had a response to my second email, they were working on one. She also offered to set up a face-to-face meeting. I stated that I did want a meeting, and that I wanted that meeting to take place prior to a walking field trip coming up in two days time. A meeting was very quickly arranged for the following afternoon to include me, the classroom teacher, the special education teacher and also the special education facilitator, the same three people I had initially emailed my concern. The principal, though copied on those subsequent emails by the school staff, apparently declined to attend, as I did pass her in the office at the conclusion of our meeting. She offered a brief
"Hello" as I passed and nothing more.
The meeting itself was cordial and professional on their part. Mine may have been a little more hostile and emotional. It was, after all, the safety of my child we were there to discuss. I started the meeting with three main areas I wanted to discuss - the incident itself, the response to that incident, and how we move forward from here.
Some apologies were made that I had clearly been upset by the initial response, which was not their intent. Acknowledgements were made that my concerns were, in fact, valid concerns. Assurances were made that they also want what's best for Xander. And then the incident itself was discussed.
After some direct questioning, I was informed that the change took place in April of this year, with absolutely no notice to me that it was taking place. It's been happening two days every week since April, and I now have confirmation of exactly who was assigned to Xander during Friday's incident. My first response to asking who was responsible was met with what I expected,
"We were not on the playground that day so we can't be sure." When I offered the names of the four special education paras who were present, a name was finally provided.
It was, as I suspected, the fourth para standing in one place assisting with another child, among other things that did not include watching Xander.
When I asked what training had taken place, there was a pause. I was then told that Xander's newly assigned para had been instructed verbally on how to supervise Xander during recess.
"Several conversations" were apparently held. I'm not sure when or where, but I would guess it was on the playground as they were supposed to be watching Xander and not at a time when they could clearly be focused on the content of the conversation.
What makes this whole situation more difficult is that I personally know the aide who was supposed to be watching Xander last Friday. She has assisted with Sawyer in his classroom and within the school setting. But the reason I know her is that she is in Sawyer's classroom every single day, and has been for the last three school years. She knows Sawyer. She does not know Xander. She does not know Xander's IEP or his goals or behaviors or his concerns. Why would she? There is a reason we have always insisted on separate classrooms and teams for our boys. They are identical twins, and if you don't know them well, it's easy to assume that you know one just because you know the other. Many students and teachers who do not work directly with them confuse them by sight. They are, in fact, polar opposites in most ways. To know one of my twins is to know one of my twins. They are not interchangeable. They operate on two totally different levels of the autism spectrum.
I explained my discomfort at having a para who had never worked with him or known him being reassigned to him without my notice and with apparently so little training.
The issue of Xander's allergy-induced asthma and his emergency inhaler, which is at school, was brought up. It was stated that this reassigned para was not, in fact, aware of it. Instead, his regular classroom teacher kept it with her and would administer it. That's great, except for the days like last Friday when she was not there. And also, if the para assigned to watch him doesn't know to look for breathing problems, particularly in this awful allergy season, who's going to notice when he might need it? Even after they told me both a para and the regular classroom teacher were monitoring him, I explained that I did not expect his regular classroom teacher, who has twenty-plus children to monitor, to have constant eyes on Xander. They probably did not appreciate my further reference to having been on the playground multiple times and knowing exactly how the regular classroom teachers monitored recess, from sitting on picnic tables close the building and chatting with one another. Whether appreciated or not, any other parent or staff member on the playground at recess would confirm that truth.
I further explained that I expect a special education para to be watching Xander. And if his usual para is not going to be with him, if a new one is going to be assigned during certain times of the day, then I explained that more training should have occurred. I also offered that it would probably be helpful to have a "sub-plan" or "written document" on each special education child, so that you could easily provide it to each para who may be assigned to each child, whether it's for twenty minutes one time or twenty minutes each day or even each week. All special education children are not the same, and if you want them to have success in the school environment or any environment, then you need to make sure that every person who works with them knows and understands their basic goals, behaviors and concerns.
I also suggested, that in the future, it would be nice if Xander were informed of the change. Upon direct questioning, they told me that had never been done either. How is my child with autism to know who to approach if they have never taken the time to tell him that "Para X" is going to be watching you on "Days X and Y" the rest of the school year? A simple visual schedule for recess would have helped him understand who he should seek out if he needed help, whether that was obtaining a turn on the swings or going inside to use the restroom. Without that information or knowledge, he very likely would have just gone to his usual para, who was assigned to another child and couldn't take care of two students' needs simultaneously.
At one point in our discussion, it was further explained to me that the April decision had been made to go to a "zone" coverage at recess, that the goal was to give special education children more independence and more opportunities to interact naturally on the playground with peers, which they felt the immediate presence of a para with a child prohibited.
That explanation may have been satisfactory, had this discussion taken place prior to the change and allowed for my input. It may also have had more credibility, had that "zone" coverage on the day in question not looked like three "man-to-man" coverages for three children and "zone" for the one para whose eyes were not focused on Xander. She was far too busy assisting with a child with more severe behavior issues and also chatting with her daughter, who was standing there visiting with her on the playground that day. And, of course, the final confirmation to me that this "zone" coverage was not working or does not truly exist is that it has not been in place on the two days at which I was present for recess this last week of school. Now I could be wrong, but if one honestly felt "zone" coverage was appropriate for these children, would it not have been in place this week to demonstrate it's effectiveness and success to me? As it was, Xander's regular special education para was placed back with him, where she was never more than a few feet away from him as he moved throughout the playground.
To conclude our meeting, we also discussed moving forward. I was very clear to them that a significant breach of trust had occurred. The "team" had made a decision in April that seriously affected the safety of my child, and the "team" had not felt it necessary to ask for my input prior to the change or even notify me that a change had occurred. I told them that any future change, no matter how big or small, that had a direct impact on his safety absolutely required notification. I'm honestly shocked that the thought did not occur to them in April, because I am not what anyone would consider an uninvolved parent with my children. If a change is being made, I certainly want and expect to know about it.
Quite frankly, most of this entire issue comes down to a lack of communication and lack of proper planning and implementation. I clearly have no control over staffing issues. If you want to rotate your paras around to other students, that's completely up to the school to determine. If you feel like that benefits the special education children and gives you the staffing you need to meet all of their IEPs and their safety requirements, then that's clearly up to the school to make that decision.
But, you have an obligation to notify the parents of the children affected by such a change, particularly one that clearly involves the safety of children on a non-enclosed playground that borders two parking lots, one major road and two secondary roads. A "zone" coverage might be appropriate should you erect a fence around the playground, but probably not given the current playground location and the special education children who have the potential for wandering. If I had a child in kindergarten, I might even be concerned given my noted description of how classroom teachers tend to monitor recess.
You also have an obligation to properly train the people you are reassigning, particularly when they are going to be working with children they do not know. How can a para know what behaviors to watch for if they are assigned to a child they've never worked with? Xander likes to climb and jump from very high surfaces (well actually most surfaces). He's not above pushing a child out of his way to run past his favorite sign or go through the monkey bars. If a child accidentally bumps into him, he might respond with an even harder, more intentional hit back. He might be interested in something like a garbage truck or mail truck and leave the confines of the playground altogether. If he needs to use the bathroom, he's most likely not going to tell you if he doesn't know you, you just have to watch for his body movements. If he's having trouble breathing because of allergies or asthma, he's not going to walk over and tell you. He doesn't yet have those words or that level of understanding. If you don't know him, you don't know any of those things. This "zone" coverage might have even been more successful if you'd provided all four of those paras with clear instructions about all four of those students. But let's be honest, we all know that if the para reassigned to Xander was not properly trained (which they fully admitted was the case), they certainly did not cross-train all of the paras on all of the children.
Finally, you have an obligation to notify the children of the changes taking place. Many special education children thrive on routine and consistency. Both of mine certainly do, the one in question to a very rigid extent. If you reassign the only para a child has ever had for the year and don't bother to prepare or explain that reassignment to the child, then you're not doing your job. Even when you have a non-verbal child, or a child you think may not understand, an attempt needs to be made in their usual method (verbal, written, PECS, visual schedule, social story, etc.) to alert them to the change.
As I said, lack of communication, lack of planning and poor implementation.
I wish that I could say the issue has been addressed. I wish that I could say I am optimistic about next school year. Everyone said the right things in our meeting. But it's always actions that speak louder than words. The actions I saw this week were that once I expressed my concern, my child once again had his regular special education para back within feet of him at recess. Each special education child had a dedicated special education para following him or her around the playground. The "zone," if it ever existed, did not exist this week. As far as the the walking field trip, Xander had not one but two people monitoring him, and their plans and preparation and training (as they do not usually accompany him outside the building) for that trip were far more extensive and extensively shared than any previous field trip.
Perhaps they are simply trying hard to alleviate my concerns.
But trust, once broken, is not the same. And just as the first email response felt dismissive and evasive, the response I've seen this week seems to suggest they know they've done something to compromise my child's safety and now they're trying really hard to correct it because they know that I am very closely watching and evaluating.
I hate being this parent. I hate that I no longer feel comfortable leaving my children at school. And I hate that I have to worry about what happens at school when I'm not there. I hate that I felt it was necessary to check on my boys at school every single day this week. I hate that everyone I met at school this week either acted as though nothing at all had happened or went overboard in an effort to make me feel like Xander was being kept safe.
If the appropriate job had been done all along, the response would have been so much different. It would have been more along the lines of I'm sorry that you feel concerned, Para X was assigned to Xander Friday, and though I was not there that day she tells us that she witnessed X, Y, Z with Xander during recess. It would have explained why no one corrected him from jumping off the wall, an issue brought up only that morning by the principal on the school news, and also why she spent more time assisting another student and standing in one spot instead of moving around to keep Xander in her vision (even if it was going to be at a distance for this "zone" coverage). It would have further explained the "zone" coverage change, including when it first took place and why, and also what steps had been taken to ensure the safety of the children affected. And finally, it would have also looked the same when I appeared at school this week, because the people who made the decision to change coverage at recess truly believed it was the correct one.
Clearly not.
All I can do at this point is let it go. We're going to call it a bad end to what I thought was a pretty good school year. The boys and I are going to thoroughly enjoy our summer, where I know they will be closely monitored and supervised and safe. We will try to approach next school year with an open, if not more cautious, mind. And we will come in to our usual early orientation prepared with a clear list of our expectations for every single person in whose care our boys are placed next school year. Communication, which has been sorely lacking this year, will be more defined. Safety and behavior issues will be clearly addressed. If it cannot be done informally, it will be done with an early IEP meeting. I will try to meet them half-way so we can all make it through these next three years.
And, unfortunately, we will continue to very closely watch and make sure that our boys are indeed safe and well taken care of in their school environment. Because even though I hate being this parent, hate that I have been put in the position to make it necessary, I will still do absolutely anything that I have to do for my three boys. They deserve nothing less.
P.S. If you're wondering, as my mother did, if the school "teams" got their end-of-year gifts this year or if I threw them against that brick wall, they were given their gifts. It would have been the first time in five years of special education that I have not delivered end-of-year gifts, and I just couldn't do it Even though trust has been broken and I did not hand deliver many of them myself, they were placed on empty desks or delivered by my boys' hands. Despite the bad ending, there were many moments that could and should be celebrated, a thankfulness that should and does exist for time and effort and progress. As one of my friends reminded me, "Two wrongs do not make a right." You will, of course, have to forgive me if I did not manage to put together a bag of cookies for the para in question, who I now know was assigned to watch my child last Friday but very clearly was NOT WATCHING him. How she performed her assignment on the other 15 plus days that would have accumulated from April until the end of school, I can't tell you. But the fact that she was not there with him this week suggested it hadn't been done very well since they clearly did not want me to see it again.