As school ended and summer began, the twins started on another part of their journey. For several months (nearly a year), we have been wading through the paperwork and processes involved to obtain a waiver service that will allow the boys to have some extra help at home. It was finalized near the end of the school year, and with the help of our amazing school team contacts, we hired some amazing helpers to come in and work with the boys (each boy is allowed up to 35 hours a week in the summer and up to 25 hours a week during the school year).
It took some adjusting. The boys were not used to "working" at home or during the summer. But we've established a routine, of sorts, and the boys generally do well with it. As with most things, we work incredibly hard to balance the work and therapy aspects with everyday life and fun aspects. A lot of what they boys are doing is play, something that does not come naturally to either of our twins and that typically has a dual purpose of working on fine or gross motor skills, turn-taking, following directions or some other therapy-related skill. Board games, arts and crafts, puzzles, lots of Melissa & Doug toys that have been accumulating dust for years because the boys will only touch them if someone sits down with them to play. We also work on some basic academic concepts - math, spelling, handwriting, etc. There are also fun things like scooter rides to the park, blowing bubbles, sidewalk chalk, backyard swimming and trampoline bouncing.
And there are the adventures, which the twins love the best of all. We rejoined the local children's museum and also signed up for a membership at an indoor climbing gymnasium (think Chick-fil-a play place on steroids). Those are everyday options. The local bowling alleys have been offering up to two free games of bowling every day before 5 p.m. for joining their free kids club, so the boys have also taken advantage of that. There are also visits to the previously mentioned Chick-fil-a, Orange Leaf and the local shave-ice trucks. There are trips to pools, the local library, several different city parks, and more. They're having a busy summer.
Having the extra help has been wonderful. It's also taken quite a bit of effort in terms of coordination and paperwork. With different helpers, the schedules are varied. Sometimes Xander has a helper and Sawyer doesn't, or the other way around. And I become the substitute helper for whoever doesn't have one. Because both boys now expect to work when someone is in the house. And they will attempt to takeover whichever helper happens to be in the house, whether it's their helper or not. And then there's the weekly paperwork - time sheets, service documentation, training materials, etc.
Having help has also tied us down more this summer. Our lake visits have been limited to weekends only, since our helpers come during the week. But as we already have speech and occupational therapy on Tuesdays and Wednesdays, it's just a few more days.
We're still learning our way through the waiver program and also learning our way around scheduling and what works best for the boys. It's been great to have extra hands to help, since I can't be in three places at one time, which is often what our boys think they need. I love that the boys are getting to go so many different places, to spend time with other people and other peers doing typical things. It's also nice that all of those toys people purchased over the years are finally getting some real use. Even if it is still just a hurry up and finish to get to the next thing, at least they're playing.
Now that summer is slowly coming to an end, we'll have to readjust our schedules and figure out what works during the school year. We just have to find that balance again ...